The procedure for providing information about a patient with a rare (orphan) disease in the list of life-threatening and chronic progressive rare diseases, leading to a reduction in life expectancy or disability


DOI: https://dx.doi.org/10.18565/nephrology.2018.1.5-7

N.O. Bryukhanova, I.P. Vitkovskaya, N.L. Pechatnikova, O.N. Kotenko, I.E. Koltunov

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